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New results from the Positive Perspectives global survey provide insights into the attitudes and perceptions of people living with HIV - self-stigma, treatment, attitudes
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IAS: Experience of Living With HIV: Diagnosis and Disclosure - Findings From the Positive Perspectives Study - self-stigma is high, 63% of older HIV+ have 3+ Comorbidities - (08/02/17) - this study reports - stigma prevails: high self-stigma, depression & poor mental health/anxiety, little support; 63% 3+ Comorbidities among age 50+ 3 times greater than 18-34 years old
".....disclosure findings show that 82% (909) of PLHIV have experienced a form of stigma relating to their HIV in the last 12 months...."
New results from the Positive Perspectives global survey provide insights into the attitudes and perceptions of people living with HIV
Survey of 1,111 people living with HIV shows how they feel about treatment, interactions with their physicians, disclosure and stigma and the impact of these on their day-to-day lives
London, UK 25 October 2017 - ViiV Healthcare, the global specialist HIV company majority owned by GSK, with Pfizer Inc. and Shionogi Limited as shareholders, today presented data at the 16th European AIDS Clinical Society (EACS) in Milan, detailing a range of findings about the attitudes and perceptions towards antiretroviral therapy among people living with HIV (PLHIV).
The survey results shared at the congress concentrate on treatment and interactions with a healthcare professional. Key findings show:
⋅52% (571) were on treatment within six months of their HIV diagnosis[i]
⋅56% (604) are currently very satisfied with their treatment1
⋅43% (355) have switched their HIV treatment in the last year, with the predominant reason being side effects1
⋅71% (789) are very comfortable with raising issues of concern with their main HIV doctor[ii]
⋅89% (987) believe that advances in HIV treatment will improve their quality of life (QoL)[iii]
⋅72% (783) worry about the long-term effects of their antiretroviral medicines2
The findings are drawn from the Positive Perspectives global quantitative survey of 1,111 PLHIV conducted in nine countries (Austria, Australia, Canada, France, Germany, Italy, Spain, UK and USA). The survey, sponsored by ViiV Healthcare, was designed in collaboration with an international, multi-disciplinary Steering Committee that included HIV physicians, PLHIV and patient group representatives. It provides a view into the lives of PLHIV and explores their personal HIV journey, including coping with diagnosis, disclosure, stigma, treatment and talking to a healthcare provider.
Andrew Murungi, Scientific Lead for the Positive Perspectives Survey at ViiV Healthcare, commented: "While treatment advances have dramatically improved the life expectancy of PLHIV, we recognise there are many important challenges remaining today. We conducted this survey to find out specifically what these challenges are and to help us support the HIV community in addressing the unmet needs of PLHIV. Whilst it is reassuring to learn 89% (987) believe treatment advances will improve their QoL, clearly much needs to be done, as only 56% (604) are currently very satisfied with their antiretroviral treatment."
Preliminary data on diagnosis, disclosure and stigma were presented at the International Aids Society (IAS) congress in Paris in July 2017, which showed that only 68% (759) of PLHIV were offered support, referred for counselling or informed about support services by their main HIV doctor at diagnosis and 25% (283) felt that better education for HIV doctors would reduce feelings of stigma.3,4 Additional disclosure findings show that 82% (909) of PLHIV have experienced a form of stigma relating to their HIV in the last 12 months and nearly two in five (37%, 402) of PLHIV hide their medication to avoid revealing their HIV status.3,4
Simone Marcotullio, a Positive Perspectives Survey Steering Committee member and HIV/AIDS and Co-infections advocate for national and international communities, said: "While we've come a long way in the treatment of HIV, it's staggering to see that stigma still persists 30 years into the epidemic with 82% (909) of the people surveyed saying they have experienced a form of stigma related to their HIV in the last 12 months. A deeper manifestation of this persistent stigma is the fact that PLHIV self-stigmatise and develop a negative relationship with their daily treatment, which can lead to adherence issues and lower quality of life. These survey results help us better understand the challenges PLHIV face and can also help us find ways to address these challenges."
The Positive Perspectives Survey Report highlighting all the data is available to download from www.LiVLife.com.
⋅Ends -
Notes to editors
About ViiV Healthcare
ViiV Healthcare is a global specialist HIV company established in November 2009 by GlaxoSmithKline (LSE: GSK) and Pfizer (NYSE: PFE) dedicated to delivering advances in treatment and care for people living with HIV and for people who are at risk of becoming infected with HIV. Shionogi joined in October 2012. The company's aim is to take a deeper and broader interest in HIV/AIDS than any company has done before and take a new approach to deliver effective and innovative medicines for HIV treatment and prevention, as well as support communities affected by HIV.
For more information on the company, its management, portfolio, pipeline, and commitment, please visitwww.viivhealthcare.com.
About The Positive Perspectives Survey Report
The Positive Perspective survey was sponsored by ViiV Healthcare and conducted by GfK UK Limited, an independent market research agency. The survey was conducted in nine countries (Austria, Australia, Canada, France, Germany, Italy, Spain, UK and USA) with a total of 1,111 PLHIV. The recruitment of PLHIV for this survey included working with charities, patient support groups and NGOs, HIV online communities and also promoting the research via social media (Facebook / Instagram / Twitter) in each country. The survey questionnaire was designed by ViiV Healthcare in collaboration with GfK UK Limited and through consultation with an independent Steering Committee of HIV professionals and advocates. The Positive Perspectives survey data are owned by ViiV Healthcare and will be presented at upcoming conferences, subject to abstract acceptance.
About GSK
GSK - one of the world's leading research-based pharmaceutical and healthcare companies - is committed to improving the quality of human life by enabling people to do more, feel better and live longer. For further information please visit www.gsk.com.
References
[i] Young B, et al. Patient Experience & Views on Antiretroviral Treatment - Findings from the Positive Perspective study. Presented at the Infectious Disease Week (ID Week conference), 4-8 October 2017, San Diego, USA. Abstract number #1393
[ii] Positive Perspectives survey, 2017 DOF
[iii] Murungi A, et al. Experience of living with HIV: Diagnosis & Disclosure - findings from the Positive Perspective study. Presented at the IAS Conference on HIV Science (IAS 2017), 23-26 July 2017, Paris, France. Abstract: WEPED1423
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