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HIV/Infectious Disease Providers Launch CURE HIV-COVID Registry
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Capturing Occurrences and Outcomes of COVID-19 in HIV Patients
FOR IMMEDIATE RELEASE: 4/15/2020
Anita Kohli, MD and Jane Julian
HIVCOVID.org
480-605-4445
akohli(at)azliver.com
Baltimore, MA: To aid in the understanding of the impacts of COVID-19 on HIV patients, physicians from the Institute of Human Virology, University of Maryland, Baltimore and Arizona Liver Health in Chandler, AZ, have launched the CURE (Coronavirus Under Research Exclusion) HIV-COVID registry for physicians to report confirmed COVID-19 occurring in HIV patients. Their mission is to understand the natural history of COVID in patients with HIV, determine the effects of treatments given, and share their findings with providers around the world to accelerate our understanding of COVID-19.
Speaking about the reasons for why they launched this registry, Dr. Anita Kohli of Arizona Liver Health says, "For persons living with HIV, the effect and outcomes of co-infection with SARS-CoV-2 is unclear. The HIV virus is known to cause abnormal or impaired response to infections, so there is a potential for increased adverse outcomes in patients with HIV, which is what we want to learn more about."
They know that more data is required to understand how to bestbest to manage and treat patients with HIV and COVID-19 and hope to improve the care of patients with co-infected with HIV and COVID-19 as well as overall survival. Kohli adds, "Summaries of data reported to the registry will be shared and updated on the website at least twice a week so providers can review. Given our unique patient population, we hope providers will take the time to share this critical information so we can rapidly find answers on how best to care for HIV patients with COVID."
About CURE HIV-COVID: CURE HIV-COVID (www.HIVCOVID.org) is an IRB approved registry that has been developed by a team of experienced HIV providers at the Institute of Human Virology, University of Maryland, Baltimore School of Medicine (Dr. Shyamasundaran Kottilil, Professor, Director of Clinical Care & Research and Ms. Amy Nelson, MS, RN) and at Arizona Liver Health and University of Arizona (Dr. Anita Kohli, Director of Research, Adjunct Faculty at the University of Arizona). Plans for opening the registry to providers internationally are underway.
If you have treated patients with HIV infected with COVID, please enter these cases (no PHI) into the CURE HIV-COVID database at www.HIVCOVID.org.
Data will be accrued from patients all over the world on natural history, treatment and outcomes and shared in real time on the site to help gather information on this patient population.
(IRB reviewed and meets non-human subjects research criteria, so anyone can enter information from any site)
This is a global and collaborative effort sponsored by the University of Maryland, Institute for Human Virology.
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