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ViiV ADHOC Aging/HIV Study Registry / Database - "Loneliness Among Older Adults HIV+"
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Aging- HIV Clinic/NYC - "We are Unprepared to Care for Aging" - Those who are over 50 years of age must contend with HIV infection and aging simultaneously, and the current workforce is unprepared to care for this aging population" "In light of near-normal lifespans for PLHA, a recent Dutch study projected that by 2030, 73% of those infected with HIV will be at least 50 years of age and 39% will be 60 years or older.
ADHOC: Ongoing online community & research study collecting relevant information from HIV+ older people
ViiV ADHOC Poster report: Loneliness among older adults living with HIV: a study and online community. IDWeek 2018, October 3-7, 2018, San Francisco
50% report living alone of those who are lonely, 76% report lost spouse or partner to HIV, 74% report >5 comorbidities
ViiV ADHOC Aging/HIV Study Registry / Database
Aging with Dignity, Health, Optimism, & Community
An online community and research study for individuals over age 50 who are living with HIV
The population of people living with HIV (PLHIV) is aging. In the United States, 45% of this population is aged 50 or older and this percentage is climbing.1 Researchers have begun to study the many challenges facing older PLHIV including: loneliness, social isolation, financial insecurities, mental health issues, substance abuse, premature comorbidities, and frailty. These factors can impact age-related, patient-reported outcomes and quality of life. This poster addresses the association between loneliness and aging among PLHIV. Specifically, among individuals over 50 years of age with HIV, it explores whether increasing age is associated with greater, similar, or lower levels of loneliness.
To study the situation faced by older PLHIV, a new registry and online community, called Aging with Dignity, Health, Optimism and Community (ADHOC), was launched in October 2017. ADHOC is an observational disease registry that has three main goals: to research how HIV is impacting the aging process, to improve clinical care, and to create community by connecting patients to one another using a secure, online environment. The data collected through this registry is self-reported and includes information on sociodemographics, activities and interests, HIV diagnosis and status, health care use and satisfaction, antiretroviral therapy, comorbid medical conditions, health and well-being, substance use, and sexual practices.
Where appropriate, various validated patien-treported outcome measures (PROMs) are collected,
including:
• The UCLA Loneliness Scale-3
• PozQoL
• Brief Adherence Rating Scale (BARS)
• Functional Assessment of HIV Infection (FAHI)
• Connor-Davidson Resilience Scale (CD-RISC)
• Internalized AIDS-Related Sigma Scale
• Patient Health Questionnaire (PHQ)
• Alcohol Use Disorder Identification Test (AUDIT)
• Assessment of Body Change and Distress (ABCD),
and
• the Frailty Index for Elders (FIFE).
To date, participants have been identified and recruited by medical providers specializing in HIV care from CA, Washington DC, FL, NC, TX, WA, and WI.
To date, little research has been published looking at the association between aging and loneliness for PLHIV. Loneliness was highly prevalent among the ADHOC study population. A previous study, also using the short form of the UCLA Loneliness Scale,
reported an 18.1% prevalence of loneliness in an older (ages 52 and above) non-diseased population, compared to a 48.3% prevalence of loneliness in the ADHOC population (ages 50 and above).
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ViiV ADHOC Aging/HIV Study Registry / Database
Aging with Dignity, Health, Optimism, & Community
An online community and research study for individuals over age 50 who are living with HIV
https://www.welcometoadhoc.com/
We are proud to be partnering with these leading clinics and research centers:
• Central Texas Clinical Research
• Midland Medical Center
• Peter Shalit, M.D.
• Red River Family Practice
• Rosedale Infectious Diseases
• Southern California Men's Medical Group/Men's Health Foundation
• Stanford Positive Care Clinic
• UC San Diego Health
• UW Health
• Whitman-Walker Health
Eligible participants who are verified as patients at a partner clinic will receive a $100 Amazon gift card for participating in the study.
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